Jenna's Healthful Journey through Hypersomnia, EDS, and POTS
Join us for an interview with Jenna and discover how she has been able to manage through her journey after diagnosis with Hypersomnia, Ehlers-Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome (POTS). This is Jenna’s Healthful Story. Please note that the video may only play in landscape mode on a mobile phone.
Navigate Jenna’s Journey with Hypersomnia, Ehlers-Danlos Syndrome, and Postural Orthostatic Tachycardia Syndrome (POTS)
Diagnosis
20:57 Distinguishing between Idiopathic Hypersomnia and Narcolepsy
22:50 Starting with Instant Release Ritalin, 20 mg twice per day, made me jittery and nauseated
27:50 Extended release methylphenidate hydrochloride (Concerta) and Modafinil (Provigil)
29:32 Biggest improvement was seeing a neurologist
30:46 Diagnosis with Ehlers Danlos Sydrome [Chronic fatigue contributes to poor health-related quality of life in the Ehlers-Danlos syndromes (EDS)]
30:50 Diagnosis with Postural Orthostatic Tachycardia Syndrome (POTS) is a condition that affects blood flow. POTS causes the development of symptoms — usually lightheadedness, fainting and an uncomfortable, rapid increase in heartbeat — that come on when standing up from a reclining position and relieved by sitting or lying back down
41:36 The number one thing is to listen to your body.
42:55 If your diagnosis doesn’t feel right or you feel it doesn’t explain everything, keep digging.
44:19 It’s never too late to get that diagnosis and figure out what’s going on.
"If your diagnosis doesn’t feel right or you feel it doesn’t explain everything, keep digging. It’s never too late to get that diagnosis and figure out what’s going on."
Jenna
Other Related Healthful Stories
Support Our Healthful Mission
At Healthful Stories, we believe in the power of sharing health journeys to inspire and empower others. Your kindness can make a difference by helping us collect, edit, and share these stories with the world. Whether through donating, volunteering, or sharing our mission, your support helps magnify our impact on those managing through illness.